Friday, March 25, 2011

Bad news in our personal life :(

We took kody to his orthopedic surgeon for follow up appointment after his second hip osteotomy done in october (along with 12 other procedures) to reduce the risk of EVER needing another hip surgery! We were caught off guard with the most heart wrenching, devastating news....kody's plates and screws did not hold the hip in correct position. Not only do they not look good, this is the reason he is still in pain! I am heart sick right now. I honestly don't know if my mommy heart can handle putting him through another operation. I have appointments at Cleveland clinic and Johns Hopkins for 2nd and 3rd opinions! Lots of driving! I really just thought it was time for a break from surgeries after this last one that was a 3 month hospital stay :( Prayers welcome! On another good note.....we have pre-constuction meeting Monday and FINALLY break ground on Wednesday!
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11 comments:

  1. Noey814March 25, 2011 at 3:19 PM

    Oh hon!! =( I'm so so sorry. *great big hugs* I can't imagine how frustrating this is for you and him. As moms, we just want to fix it and make it all better. And we can't do that, it just kills us...we hate seeing our children in pain. I will be saying prayers, you can bet on that! Keep us posted.

    As far as the house goes, I'm glad you get to break ground soon! Congrats on that!

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  2. AnonymousMarch 25, 2011 at 3:43 PM

    I am so sorry to hear about this...I know nothing I could say could make you feel better...but I just wanted to say that...God makes no mistakes....Kody is a wonderful kid and with all that he has endured....I know just how strong God made him!!! and he gave them to the two people in the world who could handle all of it.....thru any surgery or emotional, physical, mental obstacle that may have came your way... God Bless you and your family!!! I will lift your family up in prayer.....Stay Strong...and try to eventually turn that frown upside down :).... With much love!!!- India

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  3. momoftwinsMarch 25, 2011 at 4:07 PM

    Thank you guys so much for being there! I have trouble telling people how I feel but you guys are like my little family on here. I know everyone has their struggles and we only get stronger because of then. Kody is the strongest person I know in the entire world! He motivates me to be better and his smile can melt a million hearts ....thanks again girls and I have been following your blogs daily! Noey, I have been praying for you as well!

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  4. tashaMarch 25, 2011 at 5:01 PM

    I am so sorry no doubt you and your family are in my prayers along with a very special prayer for Kody. There are no words to explain a Mothers love for her children neither to explain how she feels when her children are in pain. I don't know the words to say but I definitley know the feeling.

    Sounds like Kody is a very special and strong little boy. I have faith the Lord will see him through.

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  5. 2011March 26, 2011 at 5:15 AM

    I can't imagine what your family is going through right now. The day will come when everything works and he's no longer in pain.

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  6. k mMarch 26, 2011 at 5:35 AM

    I too am so sorry to hear this. You, your son, and your entire family will continue to be in my prayers. It is so easy to see that God chose the right parents for Kody. I hope that the appointments you have coming up will provide some solutions.

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  7. StephanieMarch 31, 2011 at 8:31 AM

    I am soo sorry I just stumbled onto your blog. All I can say is WOW! Since the hospital made an error with the screws/plates in the wrong position I hope they would be covering the costs?

    I will be thinking of you and your family and will be saying a prayer for you. Hugs to you all.

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  8. momoftwinsMarch 31, 2011 at 8:37 AM

    There is no cost! Insurance pays all of his bills...thank god! I just wish someone could take his pain and suffering! We have a second appointment tomorrow. I left a lot out..we are wondering if childrens institute rehab is to blame since they broke his femur right after the body cast came off and HD couldn't have therapy and held his hip in horrible position. I'm just soooo angry I want someone to be responsible! I as a mother should not have to keep putting my child through so much pain :(

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  9. StephanieMarch 31, 2011 at 8:50 AM

    Thank goodness for the hospital bills they can be sooooo expensive and am glad to hear that you have GREAT insurance!

    Being a mother can bring so much joy and pain when it comes to our kids. I know you do have a lot of things on your plate but is there a way you can look into filing a complaint with the Childrens Institute Rehab or something? Are they compensating you in some way? Sorry if I am asking too many questions your story just absolutely captures me.

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  10. momoftwinsMarch 31, 2011 at 8:58 AM

    No i don't mind you asking....a lot more happened at that place such as not following doctors orders and leaving him go 8 days without a bowel movement! When orders were written for a enema every 48 hours and 8 nurses were on shift and ignored it, the broken femur went 3 weeks until x-rayed while continuing to have physical therapy twice a day screaming in pain. I arrived one day and found him in toy closet wandering around where no kids were permitted! So many things I could go on and on! All they could do was apologize, yet my child is still afraid to let anyone near his leg because of the anxiety of the 3 weeks that no one believed his leg was hurt! We are looking into further action!

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  11. StephanieMarch 31, 2011 at 9:03 AM

    I am soo glad to hear that you are looking into further action! They should be more accountable after all you are putting the love of your life into their hands. Please do keep us updated on your sons progress. Thanks so much for sharing. =)

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